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My story: Ed and lung cancer

Updated on October 23, 2024

After a life-changing lung cancer diagnosis, Ed was told he only had a few weeks left to live. Watch Oncology Nurse Navigator Carey Baumann speak with Ed and his wife, Linda, about their fight for survival and the importance of having a caregiver.

Medically reviewed in February 2020.

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Transcript

00:00
My goal is to die of old age, not lung cancer. [MUSIC PLAYING]
00:08
I'm Carey Baumann. I'm an oncology nurse navigator. And Ed, Why don't you tell us about your cancer, your cancer
00:14
story? One day in New York, I got a terrible back pain. I couldn't get my pants on.
00:21
It took 45 minutes just to get my pants on. It ended up, ultimately, that I had advanced lung cancer.
00:28
It had metastasized. I had tumors everywhere. Everywhere. It was so bad the x-rays showed up [INAUDIBLE] pretty
00:37
much everywhere. I was told that I only had a couple of weeks, maybe a month to live.
00:43
I just went into a black hole. You are told that you're going to die, so now you don't know what's going on in your life.
00:50
All you know is tremendous fear. That's where I still go back to the caregiver
00:56
is critical to keeping a person alive. How does the role as a caregiver for Ed, how does that work for you?
01:04
Being a caregiver is a lot more difficult than people realize, because he's
01:10
focusing on trying to get well and dealing with his treatments and the side effects that he has from those things, while I'm taking care of him,
01:19
making sure he's eating and making his appointments for all the different doctors that he has to see,
01:27
and also at the same time, trying to look to the future and seeing what possible treatments are out there that
01:34
would be something that he might be able to use in the future. He has totally surprised me at how he's taken having cancer
01:45
because I really didn't think he would deal with it very well at all. But he has been so strong and has never
01:52
lost his will to fight and to live on and that's why I fight so hard to keep him in treatment, because I know that he doesn't want to die of cancer.
02:01
He wants to die of old age. And so my goal is to make sure that happens. She's the reason I'm still alive
02:08
and I've been through a lot, believe me. But 16 years later, I'm still alive. Still alive. [MUSIC PLAYING]

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