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Patient perspectives: living life with atopic dermatitis

Updated on October 23, 2024

From navigating cooler seasons to treating flare-ups in the workplace, atopic dermatitis patients are finding creative ways to manage their condition.

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Transcript

00:00
So now we're going to move into how atopic dermatitis affects every aspect of our lives.
00:07
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00:13
How does atopic dermatitis affect your social life, your personal life, dating or work life, family life?
00:19
The biggest area it's affected is just my career as a physician, having to constantly wash my hands,
00:28
sanitize and things like that. I am a pharmacist by career, but I have a side business
00:37
that really came from my need to find something that worked for me. I work for an asset management group, so I'm in finance.
00:43
I'm just typing all the time. When I get a flare-up, I always have it on my knuckles, which makes me crazy, but it's very stiff.
00:50
[INAUDIBLE] understand, but since flare-ups do happen often unexpectedly, they just kind of be like, hey, just go through it, work through it.
00:56
I'm like, I'm in pain right now. Why don't you understand that? It definitely impacted my social and personal life,
01:03
especially when it came to dating and feeling confident in my own skin. There has been a time where atopic dermatitis has brought
01:10
me down to a shell of a human. That's when I truly reached out to my support system.
01:18
Our next thing we'll talk about are the seasons, because I know, for my patients, I'm in sunny South Florida, hot, humid climate.
01:25
I would say my worst seasons are the spring and the fall. Fall and the spring for me are awful, especially
01:33
with the pollen in the spring. I can tell you when the pollen is about to fall and when the flower is about to bloom.
01:39
The cool humid tends to be a little bit worse because there is some drying that I have.
01:45
Where would you like to be with your atopic dermatitis in five years? I think, in five years, I just want progress to be made.
01:55
Doesn't have to be perfect, but I think just the anxiety, I would love for that not to be part of the plan.
02:01
I feel like I'm there now almost, but it's really loving myself with eczema, without eczema,
02:09
just truly loving who I am, living life to the absolute fullest, doing what I love to do. I would love for my atopic to be healed.
02:20
I feel like I'm getting there and figuring things out for myself. I would love for it to be more of an afterthought,
02:26
and I would love to be part of the solution, at least for physicians and other health care professionals
02:33
to find something that still keeps our hands clean and sanitized, without stripping all of the moisture
02:40
from our hands. I've become a lot more comfortable with sharing it.
02:46
And I hope that that continues. I just hope that I'm at least able to have the same level of hope in five years about managing
02:57
it and treating it. Thank you all so much for chatting with me today. I learned a lot, as a dermatologist who sees a lot of patients with eczema.
03:05
And I'm so thankful for all of you for sharing your stories. And I know that your stories will really

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